For a many, many months I have not gotten any mail from my blog, because why would I? I haven't been updating anything. All of my friends and family share my life with me on facebook, where Liam is quite the superstar (if you ask me!!) and I have just been so very busy. This morning I woke up to find a comment on my blog:
"What kind of an evil person would KNOWINGLY take any chance of giving this terrible disease to her child? Every time he is in pain remember that YOU INTENTIONALLY caused it. It is your fault. You KNEW he was going to be subjected to a life of INCREDIBLE PAIN."
Now, most people would just delete this, but I am not most people. I decided, after a long, hard thought session, that I am going to leave it up. I am going to leave up the comment that had me searing hot mad all day long. I am leaving it up because I want other people to see it and hear the hate and ignorance that humans are capable of having towards people that they have NO idea about what they go through. I want to take a moment to address "Anonymous" since I cannot address them properly because they didn't have the cahones to leave their real name or contact info.
Thank you for your uncalled for comment on my blog. Thank you for taking the time to read my entries about how HAPPY and LOVING and SWEET my son is, and then berate me for having children. Contrary to what you believe (since you KNOW nothing about EB or myself) I decided to have a child because I love children...and I can provide a nurturing, happy and safe home for rearing a child. I am neither selfish nor evil. I live my life to help others. I am a best friend, I am a good samaritan. I am a nurse, I am a helper. I am a strong, resilient, charismatic and loving person. And, above all, I am a mother. I try to educate people about EB. This blog was created so I could share what I go through with others going through it. Not to be subjected to your ignorant thoughts. There is a lot more to having a child than EB. Why should I deprive myself? Am I less of a woman because I have a faulted gene? Do I not have the ability to raise a happy, well adjusted and loving human being? I am not going to lash you, because believe me, I could. But, just know that I know you must've googled EB to even have found this blog. I know you read all the posts. And to know that I infuriate you enough that you had to write that just makes it clear to everyone who reads this, and all my other EB moms I shared your wisdom with, how we need to step up the game on awareness. You jumped the gun a little...sorta stumbled onto someone's blog that has a lot more knowledge on the subject than you would ever care to know. You hurt my feelings. You upset me...but you did not succeed in making me question whether or not I should be a parent, which was your pure intention. Just remember that only God can judge us. Only God can create a life as precious as my Liam. My son is the epitome of happy. My son does not live in constant pain. My son is loved more than anything in the world. I have more friends and people that love me than you could ever even fathom. No one likes ugly. And you have went out of your way to be hideous. Please be respectful of other people's lives. You never know what someone is going through or has been through. Your opinion doesn't count in the grand scheme, so perhaps ponder the idea of keeping it to yourself. You should be ashamed of yourself.
Ugh. OK. Now that I got that out of the way... I feel better. Thank you to all of my friends that were so supportive and loving. I am so blessed by this life. God works mysteriously. I am far from perfect, but all things happen for a reason. When you find your purpose in life, it is magical. Being the mother to Liam is the most amazing and humbling experience. I wouldn't change anything about him, because then he wouldn't be who he is. Wishing that he didn't have EB would be wishing I had a different baby. At conception he was who he is. And he is phenomenal. He is beautiful. He is loving. He is my soul. And my husband and I love him to pieces. I have a mother who loves me, and who adores Liam. I have the more people in my corner cheering me on than I could ever have dreamed of. I have friends that really "get me" and really love me. I really wouldn't change a thing about my life. So, when you are reading this, and you get to the point where you want to say something crass or delusional...just remember, I really don't care, I have too much happiness and fortune in my life to entertain regrets. God bless you all, each and every one of you!